Overall today has been a better day for Katie! Her mouth pain has been better controlled since starting on the Dilaudid PCA and she/the nurses has figured out a regimen of 3 different mouth rinses/medicine to enable her to eat (select foods). Katie had more energy today, but says she feels the fatigue set in faster when she tries to walk or exert herself too much. Her face is still very swollen from the mucositis and her feet are starting to swell again.
On another note, her blood culture came back positive today from her central line. It will be at least another 24 hours before we know the exact location (the peripheral culture has not come back yet) or species. The Dr. said if he had to guess it is staph (it lives on your skin and has many openings to enter with her mouth sores). The good news is that Katie has not had a fever since yesterday so one of the 6 medications they started "just in case" is working on the infection! Hallelujah!!!!
Katie remains in great spirits despite the small setbacks she has had to endure. Keep praying!
Thank you, Thank you, Thank you for your continued love, support, and prayers!
Love,
KJenn (a nickname we came up with a long time ago combining our names :-)
Hey, KJenn!
ReplyDeleteThanks for working together to keep all of us who care updated on Katie's status (and there are LOTS of us!). It's nice to know when things are going well, and we can pull for your quick recovery when they're not going so well. So glad to hear that the fever has gone away.
Katie, I'll see you tomorrow - I'm bringing some pictures of Rachel and Ryan for your scrapbook!
Love, Aunt Sherry