August 10th

Well, I had an appointment at Baylor today. My numbers are messed up again but "you look great" haha thanks doc. I still feel like I've turned a corner though. There are always set backs along the way big and small. I've been having a sharp shock-like feeling if that makes since down my spine when I move my neck up or down. So next week I'll have a lumbar puncture and an MRI of my spine. I'm okay with that. Just figure out what it is wrong and take care of it and move on! On a happy note, doctor says I can get back to work whenever I'm ready now. I'm ready to start working...part time...to make sure I can really handle it 5 months after transplant. He stopped a few more meds today including my blood pressure medicine! yay! But he wants me to check my bp often and wants me to have my own bp machine at home....my insurance covers it, even better! I've been stretching and working out (very light working out) and I've been getting really bad cramps in my calves like charlie horses that don't let up, so I guess I'll try doing it maybe every other day until my legs start getting used to it. After all, after being in a bed for 7 or 8 months I have quite a bit of muscle atrophy and it's not easy to build them back up, but I'm putting in great effort so hopefully it will get better soon...no pain no gain right? haha. I spoke about Samantha a few days ago, and I'd like to quickly update you on her. She finished her induction chemo and was sent home only to find out that she has multiple blood clots from her neck down her arms. So she will only spend a few days home until she goes back for round two of chemo. She is taking a blood thinner for the clots but I just don't understand how that happens really, because our platelets are so low at that beginning point and the blood has a harder time clotting. But it did happen and she really needs our prayers! I would love nothing more than for all my friends, family and strangers to pray for her as you have prayed for me! I greatly appreciate your love, support and prayers!

Still Fighting,
Katie

5 Months Post Transplant

I don't even know where to start! So much has happened in the past 3 weeks or so. I guess I'll start with my favorite thing that's happened; I FINALLY FOUND SOMEONE ELSE MY AGE WITH ALL THAT IS ALSO PH+ LIKE ME! It only took 10 months haha. Many of you know how hard I tried to find just one person, and then that person found me! yay. Her name is Samantha, she lives in Colorado and was just diagnosed July 14th I believe so she is still in the hospital for her "induction" round of chemo which usually lasts about a month. She has two siblings that will be tested to see if they are stem cell donor matches if not then she'll go to the national registry to hopefully find a completely matched donor. It makes me extremely happy to be able to help and coach someone through this, especially because I can pretty much guarantee she wont find anyone else for a while if at all that's our age. Like myself, she too is a young mother of a young little boy. I pray that as you prayed for me that now we can all pray for her as well. Meeting her was definitely a blessing to me. Now an update on myself. I FINALLY FEEL LIKE I'VE TURNED A CORNER! I haven't been sick in 3 weeks! Getting more energy each day and I actually would like to start working again! Of course I have to see if my doctor will release me to work but since winter will be here in a few short months I really don't know if he will given I wont have any of my shots (all the ones babies get from 2 months on), and I don't know if he'd want me in a crowded office, hospital especially, or clinic for that matter. We will see. I would start at part time of course to see if I can handle it or if I jumped the gun a little. Most people don't feel "normal" again for 8 months to a year from what I've heard and read but hey I'll never be "normal" this is my new normal. Last week my numbers were in great shape, my platelets were even 150,000 which is the highest they've been since I was diagnosed. Oh and we're starting to wean off some of my medicines. I hate taking 20 something pills a day so I'm 100% ready to cut it as much as I can and believe me if that means begging Dr.V to get off something I'll do it haha eventually he gives in and says "ok w can drop the dose or cut it in half then ok lets stop this med" and score one more gone =) My sister and one of my biggest fans is celebrating her birthday on August 16 as well as my daughter Rachel and friend Brianna, it will be a busy month. I'm hoping to go to Austin in 2 weeks to see the babies and of course I could never miss my princesses very first day of kindergarten!! Ryan will be in first grade, I'm so glad they have each other. Thank you all for continuing your love, support and prayers!

Still Fighting,
Katie

Kjenn and Rachel! Happy Birthday Girls. Love you infinity x the world!