day + 104

Not too much to report. Tomorrow I have my 3rd and last bone marrow biopsy for a while. Um, I've lost 40 lbs since transplant day, I have hair coming back....finally....hair everywhere but my legs, makes for a great summer =) It would be awesome if it never came back but I know that's probably not possible haha..wishful thinking. I really don't have much going on these days but getting my strength back...which isn't easy, I watch a lot of movies, take lots of naps...etc...just what the doctor ordered so I guess this time I'll listen =) I'll post when I get my 3rd set of results from the bone marrow biopsy!

Love,
Katie

Day +100

WELL WE'VE MADE IT FOLKS! DAY 100 POST TRANSPLANT WITH NO MAJOR COMPLICATIONS THUS FAR! I DON'T REALLY HAVE MUCH MORE TO REPORT LOL BUT I'VE FINALLY HAD A FULL WEEK W/OUT BEING SICK AT LEAST ONE OF THE DAYS. THANK YOU AGAIN FOR ALL THE LOVING THOUGHTS, PRAYERS, CARDS, AND ENCOURAGEMENT ALL THE WAY. EACH AND EVERY ONE OF YOU HAVE HAD A HAND IN MY FIGHTING THIS LEUKEMIA!

STILL FIGHTING,
KATIE

Day + 97

Day + 97, that means Friday is Day + 100! I was never sure if I'd actually ever say that. My blood counts have pretty much remained consistent except my magnesium, for some reason my body just wont absorb it. I take 9 magnesium pills a day and get infused with magnesium once a week at the clinic. Days are still up and down, there are great days, good days and just plain bad days. Today is a good day and I sure hope tomorrow is too as I have plans w/ great friends! I finally mailed my letter to my donor and I hope he writes back! I would love to meet him one day. I will have one more bone marrow biopsy Tuesday the 28th, should be the last for a while! yay! The best part of this month was having Ryan and Rachel out in the country at Aunt Sherry and Uncle JD's house! They loved playing in the sprinkler and playing with all the animals, and shopping! It was nice and peaceful! Thank you Aunt Sherry and Uncle JD! Rachel made a new best friend in cousin Amy, she keeps talking about hanging out and shopping with Amy lol it's too cute!

Katie

Day + 78

Hello Friends! I finally have a chance or feel well enough to blog this morning! I know it's been a while and in that while not too much has been going on. I've now had my 60 day bone marrow biopsy and everything was negative! The pcr, fish and bcr/able...all negative! Also the doctor told me I was "all boy" haha meaning all my cells are all donor cells so not only did the transplant take it did exactly what it was supposed to! I do take around 20 pills a day. Things for anti rejection of the transplant to steroids, anti virals, anti bacterials and a couple of them in combination have messed with my eyesight, loss of appetite, fatigue etc. Some days I still need to sleep quite a bit and others I'm ready to get out and do anything! That's really just about it as far as post transplant goes. On a happier note I've gotten to see Ryan and Rachel quite a bit this last month! Ryan's school had a mothers day tea and Jenn was nice enough to make a day trip with me to Austin to see him. And of course while there we couldn't leave with out seeing Rachel at her school too, she couldn't have been more excited to see us! Poor thing didn't understand that we were only there to visit and had to go back home so she cried for a few minutes and then we had to get going, broke my heart but I went back the very next weekend to take them to my best friends house for the weekend, we literally just stayed in all weekend and enjoyed each others company, they pretty much stayed right by side all weekend! Rachel had her first dance recital this past Sunday, I couldn't really make the 3.5 hour drive again as I usually get car sick but everyone said she did really good and I will just have to buy the video for $25 of her 5 min of fame on stage lol. Now I feel like I'm just rambling, like I said like is pretty boring right now, still just laying low and allowing my body to recover. Ms. Kennedy, I would love to plan a lunch or dinner one day, maybe your mom and Jenn would like to come too! You are amazing and strong and I can't wait to meet that awesome spirit of yours.

Katie!